#Fibromyalgia #ME #MyofascialPainSydrome I'm struggling badly living with these illnesses in my life. Days at present average 20 hours a day bedbound. Everything holding me together muscle, ligament, tendons, nerve fibres are all agitated. Burning, cramp, spasms etc in waves.

I'm lying in dark most days coming in/out of sleep. After 25 years this is the worst tiredness has ever been both in body & brain exhaustion. Nerve pain very prominent in neck/shoulders/complete arms into wrists/hands. Swollen but more so when I get to warm or climate is sticky.

Feet, calf muscles, inner knees, hamstrings, leg quad muscles feeling no better. It feels honestly like you'd want to stretch skin from your bone to ease things. Like soft tissues are superglued to the bone. Is this a sign that a lack of oxygen getting through muscles?

I feel in a bad near desperate place in myself at present. Tinnitus is constantly there plus headaches also. Like multiple systems in your body being attacked. These illnesses I have are now 24 hours a day. I feel real internal stress at worst times unable to cope.

You'd need to be one bad article for me to wish this on you. It's real, it's disabling. From being a sportsmad active teen to now a 44yo now obese man who is a recluse isn't good for your syce either. I've suffered bad bouts of depression even had ECT therapy.

Anxiety is another illness that has developed over the years. Self doubt at your inability to be able to do things do this. I never had a relationship ever either as ive never wanted to put the hell I'm living in on others. Long term illnesses are of no attraction to anyone.

I knew 2 young lovely women in my 20's who I had crushes on & in conversation got on well. Was too afraid to ask them out as I feel I couldn't offer anything. No job, income is benefits, chance of your own house. You want to offer love but security also & I never will have that.

A psychiatrist from SA told me Paul "you're doing the right thing" regarding relationships as I'd to much to cope with within myself to get by & the stress of feeling responsible for someone else would probably have broke my mental health down again.

As a teen was full of dreams and aspirations for life. Got a good job then bang. I played bowls as long as I could as a social outlet. I went to Portadown FC matches as long as I was well enough for. Now from April 2015 I've been housebound with no outlets.

I only see 3 people mainly. Dad, mum, brother. Relationships even hear very strained at times. The carer gets the frustration of the patient. They also feel their own frustration at not being able to help. Plus their own illnesses. At times a toxic environment.

So in finishing an isolated life which feels meaningless. I'm trying to find everyday the mental strength to keep going but for what? The new day is still pain/exhaustion & internal stress. I dont want pity but just telling the naked truth of my life w/Fibromyalgia, ME, MPS.

People might have heard of these conditions but have no knowledge of what they are and how they effect the person and their families. If you've read through this thread I'm grateful. I just wish there was specific treatment to help these conditions. A difficult life. PW.