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Day 2 of the #AutisticaFestival with fantastic panel discussions this morning on 'Quality of life, stress and wellbeing' and this afternoon on 'Mental Health and co-occurring conditions' Some of the highlights from today ...
@DrJuliaCook presented her research into autistic adult’s experiences of camouflaging in an everyday social context. An interpersonal interaction was followed by an open interview that allowed the autistic person to lead on what they felt were salient aspects of camouflage.
@cjcrompton described her work with a multi-expert group identified what factors contribute to good care and QoL. These included: managing transition, autism training , recognising and respecting autistic difference, autonomy and choice and more https://www.liebertpub.com/doi/full/10.1089/aut.2019.0080
Elizabeth Weir discussed her research into the holistic experience of autistic adult’s lifestyle and habits. This research identified diet, exercise and sleep problems. Further research is needed to explore in detail the impact of these difficulties on QoL
@Simone_j_capp discussed relationships between autistic and ADHD traits and self-reported QoL in young adults. WHOQOL-BREF measure suggested lower self-reported QoL in individuals with autism and in physical and psychological aspects in individuals with higher ADHD traits.
Ned Redmore presented on the phenomenology of everyday life within a day support service for autistic adults. The hall at the support service was fascinating. A place to learn and teach, where inhabitants shape their shared environment according to their customs and interests
Katie Linden’s research investigated CPSD and found a 50% prevalence in her sample. PTSD was much less common. CPTSD diagnosis was related to cumulative exposure to trauma and psychological stress. CPTSD is a new diagnosis and requires further research in autism.
@georgietedwards explained that anxiety in people with moderate/profound intellectual disability or those who speak few or no words is under-researched. She reported that auditory processing and repetitive behaviour were associated with generalised anxiety and anxiety triggers.
Anxiety is common in autism, and intolerance to uncertainty can cause and maintain anxiety. The program ‘Coping with Uncertainty in Everyday Situations (CUES)’ helps parents to support their children. Jane Goodwin assessed the feasibility of running this course through the NHS.
Monique Botha spoke about negative stereotypes, interpersonal victimisation and structural inequalities impacting people with autism and the negative effect on mental health. Autistic community connectedness related to lower depression scores and less psychological stress.
