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THREAD This important and timely proposal on genomics is now 90% funded thanks to your generous support.
We would love to get to 100% to start the research.
See the thread below for the reasons why: https://www.noteworthy.ie/proposal/private-genetics-database-76-Jan2020
1) The State has invested over €70 million through the Strategic Investment Fund in a private company who aim to collect the DNA of 400,000 volunteers. 
We want to examine the decision-making process as to why a private rather than public initiative was funded.
We want to examine the decision-making process as to why a private rather than public initiative was funded.
2) The private company Genomics Medicine Ireland (now trading as Genuity Science) is aiming to collect the DNA of almost one in every 10 people in Ireland.
So, we also want to look at what is being done to protect data privacy in terms of genetic material.
So, we also want to look at what is being done to protect data privacy in terms of genetic material.
3) An Irish research committee recently decided that the genomic data collected during a health research project was to be made publicly available.
We want to see if DNA-collecting companies are doing this for other projects 
We want to see if DNA-collecting companies are doing this for other projects
Here is a great explainer from @ciaralstaunton about State investment in GMI (now Genuity Science) which she says “has serious legal and ethical concerns that are likely to negatively impact genomic research in Ireland”. https://tinyurl.com/yankq8x9
Our reporter @mhdelaney is also closely following developments on this case, including her recent piece on concerns over consent and data privacy for a study to use brain tumour samples of living and dead patients: https://tinyurl.com/ya888wyt
We can start digging deep into all of these above issues as soon as the proposal is fully funded. 
Just a little ways to go now
Can you help us to get there? https://www.noteworthy.ie/proposal/private-genetics-database-76-Jan2020
Just a little ways to go now
Can you help us to get there? https://www.noteworthy.ie/proposal/private-genetics-database-76-Jan2020
