#WorldSickleCellDay
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https://abs.twimg.com/emoji/v2/... draggable="false" alt="❤️" title="Rotes Herz" aria-label="Emoji: Rotes Herz"> Adam’s Story (1/7): “My name is Adam. I am 13 years old…I like music
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🎧" title="Kopfhörer" aria-label="Emoji: Kopfhörer">, basketball
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🏀" title="Basketball" aria-label="Emoji: Basketball"> and learning new things for example, this year, I have started to learn Japanese
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🇯🇵" title="Flagge von Japan" aria-label="Emoji: Flagge von Japan">. I have been living with #SickleCellDisease most of my life.” #WSCD #WSCD2020
#WorldSickleCellDay
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https://abs.twimg.com/emoji/v2/... draggable="false" alt="❤️" title="Rotes Herz" aria-label="Emoji: Rotes Herz"> Adam’s Story, on living with #ChronicPain as a young teenager (2/7):
“Chronic pain is like the different seasons we have in
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Sometimes it is bright,
https://abs.twimg.com/emoji/v2/... draggable="false" alt="☀️" title="Sonne mit Strahlen" aria-label="Emoji: Sonne mit Strahlen"> +23 degrees where you even forget about winter, when it was -20 degrees in January w 3ft of
https://abs.twimg.com/emoji/v2/... draggable="false" alt="❄️" title="Schneeflocke" aria-label="Emoji: Schneeflocke">.”
“Chronic pain is like the different seasons we have in
Sometimes it is bright,
#WorldSickleCellDay
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https://abs.twimg.com/emoji/v2/... draggable="false" alt="❤️" title="Rotes Herz" aria-label="Emoji: Rotes Herz"> Adam’s Story (3/7): During the good days, I have a normal life, I go to school
https://abs.twimg.com/emoji/v2/... draggable="false" alt="📚" title="Bücher" aria-label="Emoji: Bücher">, see my friends & have fun! #ChronicPain is controlled with my medication
https://abs.twimg.com/emoji/v2/... draggable="false" alt="💊" title="Tablette" aria-label="Emoji: Tablette">, rest
https://abs.twimg.com/emoji/v2/... draggable="false" alt="😴" title="Schlafendes Gesicht" aria-label="Emoji: Schlafendes Gesicht">, heating pad
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔥" title="Feuer" aria-label="Emoji: Feuer"> & keeping warm in my bed
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🛏" title="Bett" aria-label="Emoji: Bett"> with my electric blanket. #WSCD2020
#WorldSickleCellDay Adam’s Story
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https://abs.twimg.com/emoji/v2/... draggable="false" alt="❤️" title="Rotes Herz" aria-label="Emoji: Rotes Herz"> (4/7): But then just as winter
https://abs.twimg.com/emoji/v2/... draggable="false" alt="❄️" title="Schneeflocke" aria-label="Emoji: Schneeflocke"> comes every year then there are bad days, when I have a pain crisis, I need to go to the emergency at @CHEO where I receive pain medication
https://abs.twimg.com/emoji/v2/... draggable="false" alt="💊" title="Tablette" aria-label="Emoji: Tablette">, antibiotics or a blood transfusion
https://abs.twimg.com/emoji/v2/... draggable="false" alt="💉" title="Spritze" aria-label="Emoji: Spritze"> #WSC2020 @colindeacon #WSCD
#WorldSickleCellDay Adam’s Story
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https://abs.twimg.com/emoji/v2/... draggable="false" alt="❤️" title="Rotes Herz" aria-label="Emoji: Rotes Herz">(5/7): Pain crisis can last a few days or a few weeks & can go on for months
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🗓" title="Spiralkalenderblatt" aria-label="Emoji: Spiralkalenderblatt"> without an end in sight!That is what it means to live w #ChronicPain. But I am a believer in keeping a positive spirit & outlook, how you think affects how you feel
#WorldSickleCellDay Adam’s Story
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https://abs.twimg.com/emoji/v2/... draggable="false" alt="❤️" title="Rotes Herz" aria-label="Emoji: Rotes Herz">(6/7): But I am a fighter
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🥊" title="Boxhandschuh" aria-label="Emoji: Boxhandschuh"> & I keep pushing to do things I love
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🧡" title="Orangefarbenes Herz" aria-label="Emoji: Orangefarbenes Herz"> because #ChronicPain does not like to take vacations
https://abs.twimg.com/emoji/v2/... draggable="false" alt="❌" title="Kreuzzeichen" aria-label="Emoji: Kreuzzeichen">
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🏝" title="Einsame Insel" aria-label="Emoji: Einsame Insel">or go on strike. The best gift
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🎁" title="Verpacktes Geschenk" aria-label="Emoji: Verpacktes Geschenk"> I could get... is to SKIP on pain completely #ItDoesntHaveToHurt #SickleCellWarrior
#WorldSickleCellDay Adam’s Story (7/7): Thank you Adam for sharing your story w us at @SenateCA
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🧡" title="Orangefarbenes Herz" aria-label="Emoji: Orangefarbenes Herz"> By working together across
https://abs.twimg.com/emoji/v2/... draggable="false" alt="🇨🇦" title="Flagge von Kanada" aria-label="Emoji: Flagge von Kanada">& beyond we can help ensure #ItDoesntHaveToHurt for kids & young teenagers like Adam w #SickleCell by mobilizing evidence-based pain management solutions