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#WorldSickleCellDay 
Adam’s Story (1/7): “My name is Adam. I am 13 years old…I like music 
, basketball 
and learning new things for example, this year, I have started to learn Japanese 
. I have been living with #SickleCellDisease most of my life.” #WSCD #WSCD2020
Adam’s Story (1/7): “My name is Adam. I am 13 years old…I like music , basketball and learning new things for example, this year, I have started to learn Japanese . I have been living with #SickleCellDisease most of my life.” #WSCD #WSCD2020
#WorldSickleCellDay Adam’s Story, on living with #ChronicPain as a young teenager (2/7):
“Chronic pain is like the different seasons we have in
...
Sometimes it is bright,
+23 degrees where you even forget about winter, when it was -20 degrees in January w 3ft of 
.”
Adam’s Story, on living with #ChronicPain as a young teenager (2/7): “Chronic pain is like the different seasons we have in
...Sometimes it is bright,
+23 degrees where you even forget about winter, when it was -20 degrees in January w 3ft of .”
#WorldSickleCellDay Adam’s Story (3/7): During the good days, I have a normal life, I go to school 
, see my friends & have fun! #ChronicPain is controlled with my medication 
, rest 
, heating pad 
& keeping warm in my bed 
with my electric blanket. #WSCD2020
Adam’s Story (3/7): During the good days, I have a normal life, I go to school , see my friends & have fun! #ChronicPain is controlled with my medication , rest , heating pad & keeping warm in my bed with my electric blanket. #WSCD2020
#WorldSickleCellDay Adam’s Story (4/7): But then just as winter comes every year then there are bad days, when I have a pain crisis, I need to go to the emergency at @CHEO where I receive pain medication, antibiotics or a blood transfusion 
#WSC2020 @colindeacon #WSCD
(4/7): But then just as winter comes every year then there are bad days, when I have a pain crisis, I need to go to the emergency at @CHEO where I receive pain medication, antibiotics or a blood transfusion #WSC2020 @colindeacon #WSCD
#WorldSickleCellDay Adam’s Story (5/7): Pain crisis can last a few days or a few weeks & can go on for months
without an end in sight!That is what it means to live w #ChronicPain. But I am a believer in keeping a positive spirit & outlook, how you think affects how you feel
(5/7): Pain crisis can last a few days or a few weeks & can go on for months without an end in sight!That is what it means to live w #ChronicPain. But I am a believer in keeping a positive spirit & outlook, how you think affects how you feel
#WorldSickleCellDay Adam’s Story (6/7): But I am a fighter
& I keep pushing to do things I love 
because #ChronicPain does not like to take vacations 
or go on strike. The best gift 
I could get... is to SKIP on pain completely #ItDoesntHaveToHurt #SickleCellWarrior
(6/7): But I am a fighter & I keep pushing to do things I love because #ChronicPain does not like to take vacations or go on strike. The best gift I could get... is to SKIP on pain completely #ItDoesntHaveToHurt #SickleCellWarrior
#WorldSickleCellDay Adam’s Story (7/7): Thank you Adam for sharing your story w us at @SenateCA By working together across & beyond we can help ensure #ItDoesntHaveToHurt for kids & young teenagers like Adam w #SickleCell by mobilizing evidence-based pain management solutions
By working together across & beyond we can help ensure #ItDoesntHaveToHurt for kids & young teenagers like Adam w #SickleCell by mobilizing evidence-based pain management solutions
