Read on Twitter
A story going under the radar.
If a family member had a brain tissue sample taken in Beaumont Hosp between 1987 & 2018, it's being given to a company called GMI. (Possibly 9,000 patient's samples) See thread below.
It's an opt out system and the closing date is 12th June. 1/5
If a family member had a brain tissue sample taken in Beaumont Hosp between 1987 & 2018, it's being given to a company called GMI. (Possibly 9,000 patient's samples) See thread below.
It's an opt out system and the closing date is 12th June. 1/5
Only a couple of ads were placed in newspapers to inform families. (See above)
I did an interview with @businessposthq about this as I think that other families should know. 2/5 https://www.businesspost.ie/health/families-torn-between-medical-consent-and-need-for-research-c2865d2e
I did an interview with @businessposthq about this as I think that other families should know. 2/5 https://www.businesspost.ie/health/families-torn-between-medical-consent-and-need-for-research-c2865d2e
To have to discuss such a personal matter with family, living far away, has been extremely difficult. They gave me permission to speak about this. 
3/5
3/5
@whytebarry @killianwoods explain the situation far better than I ever could, (only a small part of a comprehensive and well researched piece) 4/5
As it's an 'opt out' system there should have been more effort to raise awareness by GMI
Even a radio ad would have been fairer to the families that will be affected, including mine.
We'll be forever grateful to Beaumont.
Genomic med is amazing but we need #transparency 5/5
Even a radio ad would have been fairer to the families that will be affected, including mine.
We'll be forever grateful to Beaumont.
Genomic med is amazing but we need #transparency 5/5
