Thread by @DipeshGopal, 1/13 #FOAMed #MedTwitter Everything I've learnt about living and beyond #cancer research [...]

1/13 #FOAMed #MedTwitter

Everything I& #39;ve learnt about living and beyond #cancer research ( #lwbc) over the last

https://abs.twimg.com/emoji/v2/... draggable="false" alt="3⃣" title="Keycap digit three" aria-label="Emoji: Keycap digit three"> years in this

https://abs.twimg.com/emoji/v2/... draggable="false" alt="8⃣" title="Keycap digit eight" aria-label="Emoji: Keycap digit eight"> minute video! #survonc #survivorship in primary care covering:

https://abs.twimg.com/emoji/v2/... draggable="false" alt="➡️" title="Rightwards arrow" aria-label="Emoji: Rightwards arrow"> Research

https://abs.twimg.com/emoji/v2/... draggable="false" alt="➡️" title="Rightwards arrow" aria-label="Emoji: Rightwards arrow"> Policy

https://abs.twimg.com/emoji/v2/... draggable="false" alt="➡️" title="Rightwards arrow" aria-label="Emoji: Rightwards arrow"> Practice

https://abs.twimg.com/emoji/v2/... draggable="false" alt="➡️" title="Rightwards arrow" aria-label="Emoji: Rightwards arrow"> Future Directions

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.youtube.com/watch?v=jMXNMUL2SIc&">https://www.youtube.com/watch...

2/13

I wrote a couple of articles in:

@BJGPjournal

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://bjgp.org/content/70/694/226

https://bjgp.org/content/7... href="https://twitter.com/CHematology">@CHematology

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.sciencedirect.com/science/article/abs/pii/S104084281930191X

https://www.sciencedirect.com/science/a... class="Emoji" style="height:16px;" src=" https://abs.twimg.com/emoji/v2/... draggable="false" alt="👆🏽" title="Up pointing backhand index (medium skin tone)" aria-label="Emoji: Up pointing backhand index (medium skin tone)"> But summarised the content in the video above

https://abs.twimg.com/emoji/v2/... draggable="false" alt="👆🏽" title="Up pointing backhand index (medium skin tone)" aria-label="Emoji: Up pointing backhand index (medium skin tone)">

@Nicholas_Ralph

2/13I wrote a couple of articles in: @BJGPjournal https://abs.twimg.com/emoji/v2/... draggable=

: https://bjgp.org/content/7... href="https://twitter.com/CHematology">@CHematology https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.sciencedirect.com/science/a... class="Emoji" style="height:16px;" src=" " title="2/13I wrote a couple of articles in: @BJGPjournal https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://bjgp.org/content/7... href="https://twitter.com/CHematology">@CHematology https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.sciencedirect.com/science/a... class="Emoji" style="height:16px;" src=" ">

3/13

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Thinking face" aria-label="Emoji: Thinking face"> What is "living with and beyond cancer" or #cancer #survivorship

https://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #survonc #lwbc

The definition depends on who you talk to! Is it at diagnosis, at the start of treatment or after treatment has finished?

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://bjgp.org/content/61/592/e763

https://bjgp.org/content/6... class="Emoji" style="height:16px;" src=" https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.cancer.net/survivorship/what-survivorship">https://www.cancer.net/survivors...

3/13https://abs.twimg.com/emoji/v2/... draggable=

What is "living with and beyond cancer" or #cancer #survivorshiphttps://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #survonc #lwbcThe definition depends on who you talk to! Is it at diagnosis, at the start of treatment or after treatment has finished?https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://bjgp.org/content/6... class="Emoji" style="height:16px;" src=" " title="3/13https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Thinking face" aria-label="Emoji: Thinking face"> What is "living with and beyond cancer" or #cancer #survivorshiphttps://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #survonc #lwbcThe definition depends on who you talk to! Is it at diagnosis, at the start of treatment or after treatment has finished?https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://bjgp.org/content/6... class="Emoji" style="height:16px;" src=" " class="img-responsive" style="max-width:100%;"/>

4/13

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Thinking face" aria-label="Emoji: Thinking face"> Why is "living with and beyond #cancer" important

https://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #survonc #lwbc #survivorship

More people are living with and beyond cancer worldwide due to better diagnostics and treatments.

@macmillancancer

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.macmillan.org.uk/documents/aboutus/research/thechangingstoryofcancer.pdf

https://www.macmillan.org.uk/documents... href="https://twitter.com/CEBP_AACR">@cebp_aacr

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://cebp.aacrjournals.org/content/25/7/1029">https://cebp.aacrjournals.org/content/2...

4/13https://abs.twimg.com/emoji/v2/... draggable=

Why is "living with and beyond #cancer" importanthttps://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #survonc #lwbc #survivorship More people are living with and beyond cancer worldwide due to better diagnostics and treatments. @macmillancancer https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.macmillan.org.uk/documents... href="https://twitter.com/CEBP_AACR">@cebp_aacr https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://cebp.aacrjournals.org/content/2..." title="4/13https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Thinking face" aria-label="Emoji: Thinking face"> Why is "living with and beyond #cancer" importanthttps://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #survonc #lwbc #survivorship More people are living with and beyond cancer worldwide due to better diagnostics and treatments. @macmillancancer https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.macmillan.org.uk/documents... href="https://twitter.com/CEBP_AACR">@cebp_aacr https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://cebp.aacrjournals.org/content/2...">

5/13

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Thinking face" aria-label="Emoji: Thinking face"> Why is "living with and beyond cancer" or #cancer #survivorship important

https://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #survonc #lwbc

Whole person impacts:

https://abs.twimg.com/emoji/v2/... draggable="false" alt="➡️" title="Rightwards arrow" aria-label="Emoji: Rightwards arrow"> Physical: scars, fatigue

https://abs.twimg.com/emoji/v2/... draggable="false" alt="➡️" title="Rightwards arrow" aria-label="Emoji: Rightwards arrow"> Psycho-social: isolation, fear of cancer coming back, depression

https://abs.twimg.com/emoji/v2/... draggable="false" alt="➡️" title="Rightwards arrow" aria-label="Emoji: Rightwards arrow"> Financial: cannot return to their job

@BreastDocUK

5/13https://abs.twimg.com/emoji/v2/... draggable=

6/13

@NCRI_partners teamed up with @lindalliance to find out what the priorities are for living with and beyond #cancer research. #lwbc #survonc #survivorship

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🚨" title="Police cars revolving light" aria-label="Emoji: Police cars revolving light"> Top priority: best models to deliver care - what/where/who?

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🚨" title="Police cars revolving light" aria-label="Emoji: Police cars revolving light"> @Rachel_NCRI

@NCRI_LWBC

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.ncri.org.uk/lwbc/ ">https://www.ncri.org.uk/lwbc/&quo...

6/13 @NCRI_partners teamed up with @lindalliance to find out what the priorities are for living with and beyond #cancer research. #lwbc #survonc #survivorshiphttps://abs.twimg.com/emoji/v2/... draggable=

Top priority: best models to deliver care - what/where/who? https://abs.twimg.com/emoji/v2/... draggable="false" alt="🚨" title="Police cars revolving light" aria-label="Emoji: Police cars revolving light"> @Rachel_NCRI @NCRI_LWBC https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.ncri.org.uk/lwbc/&quo..." title="6/13 @NCRI_partners teamed up with @lindalliance to find out what the priorities are for living with and beyond #cancer research. #lwbc #survonc #survivorshiphttps://abs.twimg.com/emoji/v2/... draggable="false" alt="🚨" title="Police cars revolving light" aria-label="Emoji: Police cars revolving light"> Top priority: best models to deliver care - what/where/who? https://abs.twimg.com/emoji/v2/... draggable="false" alt="🚨" title="Police cars revolving light" aria-label="Emoji: Police cars revolving light"> @Rachel_NCRI @NCRI_LWBC https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.ncri.org.uk/lwbc/&quo..." class="img-responsive" style="max-width:100%;"/>

7/13

Most patients and clinicians agree that the community is the best place for cancer care but this needs more funding/resources.

What are the main tools for delivering living with & beyond #cancer care? #survonc #survivorship #lwbc

Care plans have a more coordination role.

8/13

Holistic Needs Assessments can be helpful up to 1 year.

But it might be better to measure engagement with services. #cancer #survonc #survivorship #lwbc

@drtessthompson @AnthonyPerreMD @aliepea

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://onlinelibrary.wiley.com/doi/abs/10.1111/ecc.13087">https://onlinelibrary.wiley.com/doi/abs/1...

8/13Holistic Needs Assessments can be helpful up to 1 year.But it might be better to measure engagement with services. #cancer #survonc #survivorship #lwbc @drtessthompson @AnthonyPerreMD @aliepea https://abs.twimg.com/emoji/v2/... draggable=

: https://onlinelibrary.wiley.com/doi/abs/1..." title="8/13Holistic Needs Assessments can be helpful up to 1 year.But it might be better to measure engagement with services. #cancer #survonc #survivorship #lwbc @drtessthompson @AnthonyPerreMD @aliepea https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://onlinelibrary.wiley.com/doi/abs/1..." class="img-responsive" style="max-width:100%;"/>

9/13

But survivorship care plans do not improve health or patient outcomes.

Probably as the studies vary too much in design, methodology and outcomes. #cancer #survonc #survivorship #lwbc

@ASCO_pubs

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://ascopubs.org/doi/full/10.1200/JCO.2018.77.7482

https://ascopubs.org/doi/full/... href="https://twitter.com/OncJournal">@OncJournal

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://theoncologist.onlinelibrary.wiley.com/doi/full/10.1634/theoncologist.2019-0184">https://theoncologist.onlinelibrary.wiley.com/doi/full/...

9/13But survivorship care plans do not improve health or patient outcomes. Probably as the studies vary too much in design, methodology and outcomes. #cancer #survonc #survivorship #lwbc @ASCO_pubs https://abs.twimg.com/emoji/v2/... draggable=

: https://ascopubs.org/doi/full/... href="https://twitter.com/OncJournal">@OncJournal https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://theoncologist.onlinelibrary.wiley.com/doi/full/..." title="9/13But survivorship care plans do not improve health or patient outcomes. Probably as the studies vary too much in design, methodology and outcomes. #cancer #survonc #survivorship #lwbc @ASCO_pubs https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://ascopubs.org/doi/full/... href="https://twitter.com/OncJournal">@OncJournal https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://theoncologist.onlinelibrary.wiley.com/doi/full/..." class="img-responsive" style="max-width:100%;"/>

10/13

In the UK, we use the Recovery Package thanks to @macmillancancer. #cancer #survonc #survivorship #lwbc

@macmillancancer

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.macmillan.org.uk/about-us/health-professionals/programmes-and-services/recovery-package

https://www.macmillan.org.uk/about-us/... class="Emoji" style="height:16px;" src=" https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://learnzone.org.uk/stack.php?s=30

https://learnzone.org.uk/stack.php... href="https://twitter.com/rcgp">@rcgp @RcgpFaculties

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">:
https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/primary-care-cancer-toolkit.aspx">https://www.rcgp.org.uk/clinical-...

10/13In the UK, we use the Recovery Package thanks to @macmillancancer. #cancer #survonc #survivorship #lwbc @macmillancancer https://abs.twimg.com/emoji/v2/... draggable=

: https://www.macmillan.org.uk/about-us/... class="Emoji" style="height:16px;" src=" " title="10/13In the UK, we use the Recovery Package thanks to @macmillancancer. #cancer #survonc #survivorship #lwbc @macmillancancer https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://www.macmillan.org.uk/about-us/... class="Emoji" style="height:16px;" src=" " class="img-responsive" style="max-width:100%;"/>

11/13

@DrN_CancerPCP and @rayychan wrote about how to move forward here: https://bjgp.org/content/70/694/226/tab-e-letters

https://bjgp.org/content/7... href="https://twtext.com//hashtag/cancer"> #cancer #survonc #survivorship #lwbc @LesleyLesleys @NitaKarnikLee

11/13 @DrN_CancerPCP and @rayychan wrote about how to move forward here: https://bjgp.org/content/7... href=

#cancer #survonc #survivorship #lwbc @LesleyLesleys @NitaKarnikLee" title="11/13 @DrN_CancerPCP and @rayychan wrote about how to move forward here: https://bjgp.org/content/7... href="https://twtext.com//hashtag/cancer"> #cancer #survonc #survivorship #lwbc @LesleyLesleys @NitaKarnikLee" class="img-responsive" style="max-width:100%;"/>

12/13

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Thinking face" aria-label="Emoji: Thinking face"> Could remote consultations help to build better relationships between oncologists, patients and primary care

https://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #cancer #survonc #survivorship #lwbc

Not everyone has access to this. @DrJeffSisler @TTrabjerg
@ProfNDerakshan

@BJGPOpen

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">:
https://bjgpopen.org/content/early/2020/04/01/bjgpopen20X101023.abstract">https://bjgpopen.org/content/e...

12/13https://abs.twimg.com/emoji/v2/... draggable=

Could remote consultations help to build better relationships between oncologists, patients and primary carehttps://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #cancer #survonc #survivorship #lwbcNot everyone has access to this. @DrJeffSisler @TTrabjerg @ProfNDerakshan @BJGPOpen https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://bjgpopen.org/content/e..." title="12/13https://abs.twimg.com/emoji/v2/... draggable="false" alt="🤔" title="Thinking face" aria-label="Emoji: Thinking face"> Could remote consultations help to build better relationships between oncologists, patients and primary carehttps://abs.twimg.com/emoji/v2/... draggable="false" alt="❓" title="Red question mark ornament" aria-label="Emoji: Red question mark ornament"> #cancer #survonc #survivorship #lwbcNot everyone has access to this. @DrJeffSisler @TTrabjerg @ProfNDerakshan @BJGPOpen https://abs.twimg.com/emoji/v2/... draggable="false" alt="🔗" title="Link symbol" aria-label="Emoji: Link symbol">: https://bjgpopen.org/content/e..." class="img-responsive" style="max-width:100%;"/>

13/13

Thanks to @ProfilesRegistr @IKNL @kwf_nl for having me and my supervisor at @QMULBartsTheLon for their time and effort.

https://abs.twimg.com/emoji/v2/... draggable="false" alt="🙏🏽" title="Folded hands (medium skin tone)" aria-label="Emoji: Folded hands (medium skin tone)">

13/13Thanks to @ProfilesRegistr @IKNL @kwf_nl for having me and my supervisor at @QMULBartsTheLon for their time and effort. https://abs.twimg.com/emoji/v2/... draggable=

" title="13/13Thanks to @ProfilesRegistr @IKNL @kwf_nl for having me and my supervisor at @QMULBartsTheLon for their time and effort. https://abs.twimg.com/emoji/v2/... draggable="false" alt="🙏🏽" title="Folded hands (medium skin tone)" aria-label="Emoji: Folded hands (medium skin tone)">" class="img-responsive" style="max-width:100%;"/>

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