Read on Twitter
1/13 #FOAMed #MedTwitter
Everything I've learnt about living and beyond #cancer research ( #lwbc) over the last
years in this 
minute video! #survonc #survivorship in primary care covering:
Research
Policy
Practice
Future Directions
:
Everything I've learnt about living and beyond #cancer research ( #lwbc) over the last
years in this minute video! #survonc #survivorship in primary care covering: Research Policy Practice Future Directions:
2/13
I wrote a couple of articles in:
@BJGPjournal: https://bjgp.org/content/70/694/226
@CHematology: https://www.sciencedirect.com/science/article/abs/pii/S104084281930191X
But summarised the content in the video above
@Nicholas_Ralph
I wrote a couple of articles in:
@BJGPjournal
: https://bjgp.org/content/70/694/226@CHematology
: https://www.sciencedirect.com/science/article/abs/pii/S104084281930191X But summarised the content in the video above @Nicholas_Ralph
3/13
What is "living with and beyond cancer" or #cancer #survivorship
#survonc #lwbc
The definition depends on who you talk to! Is it at diagnosis, at the start of treatment or after treatment has finished?
: https://bjgp.org/content/61/592/e763
: https://www.cancer.net/survivorship/what-survivorship
What is "living with and beyond cancer" or #cancer #survivorship #survonc #lwbcThe definition depends on who you talk to! Is it at diagnosis, at the start of treatment or after treatment has finished?
: https://bjgp.org/content/61/592/e763: https://www.cancer.net/survivorship/what-survivorship
4/13
Why is "living with and beyond #cancer" important #survonc #lwbc #survivorship
More people are living with and beyond cancer worldwide due to better diagnostics and treatments.
@macmillancancer: https://www.macmillan.org.uk/documents/aboutus/research/thechangingstoryofcancer.pdf
@cebp_aacr: https://cebp.aacrjournals.org/content/25/7/1029
Why is "living with and beyond #cancer" important #survonc #lwbc #survivorship More people are living with and beyond cancer worldwide due to better diagnostics and treatments.
@macmillancancer
: https://www.macmillan.org.uk/documents/aboutus/research/thechangingstoryofcancer.pdf@cebp_aacr
: https://cebp.aacrjournals.org/content/25/7/1029
5/13
Why is "living with and beyond cancer" or #cancer #survivorship important #survonc #lwbc
Whole person impacts:
Physical: scars, fatigue
Psycho-social: isolation, fear of cancer coming back, depression
Financial: cannot return to their job
@BreastDocUK
Why is "living with and beyond cancer" or #cancer #survivorship important #survonc #lwbcWhole person impacts:
Physical: scars, fatigue Psycho-social: isolation, fear of cancer coming back, depression Financial: cannot return to their job@BreastDocUK
6/13
@NCRI_partners teamed up with @lindalliance to find out what the priorities are for living with and beyond #cancer research. #lwbc #survonc #survivorship
Top priority: best models to deliver care - what/where/who? @Rachel_NCRI
@NCRI_LWBC: https://www.ncri.org.uk/lwbc/
@NCRI_partners teamed up with @lindalliance to find out what the priorities are for living with and beyond #cancer research. #lwbc #survonc #survivorship
Top priority: best models to deliver care - what/where/who? @Rachel_NCRI@NCRI_LWBC
: https://www.ncri.org.uk/lwbc/
7/13
Most patients and clinicians agree that the community is the best place for cancer care but this needs more funding/resources.
What are the main tools for delivering living with & beyond #cancer care? #survonc #survivorship #lwbc
Care plans have a more coordination role.
Most patients and clinicians agree that the community is the best place for cancer care but this needs more funding/resources.
What are the main tools for delivering living with & beyond #cancer care? #survonc #survivorship #lwbc
Care plans have a more coordination role.
8/13
Holistic Needs Assessments can be helpful up to 1 year.
But it might be better to measure engagement with services. #cancer #survonc #survivorship #lwbc
@drtessthompson @AnthonyPerreMD @aliepea
: https://onlinelibrary.wiley.com/doi/abs/10.1111/ecc.13087
Holistic Needs Assessments can be helpful up to 1 year.
But it might be better to measure engagement with services. #cancer #survonc #survivorship #lwbc
@drtessthompson @AnthonyPerreMD @aliepea
: https://onlinelibrary.wiley.com/doi/abs/10.1111/ecc.13087
9/13
But survivorship care plans do not improve health or patient outcomes.
Probably as the studies vary too much in design, methodology and outcomes. #cancer #survonc #survivorship #lwbc
@ASCO_pubs: https://ascopubs.org/doi/full/10.1200/JCO.2018.77.7482
@OncJournal: https://theoncologist.onlinelibrary.wiley.com/doi/full/10.1634/theoncologist.2019-0184
But survivorship care plans do not improve health or patient outcomes.
Probably as the studies vary too much in design, methodology and outcomes. #cancer #survonc #survivorship #lwbc
@ASCO_pubs
: https://ascopubs.org/doi/full/10.1200/JCO.2018.77.7482@OncJournal
: https://theoncologist.onlinelibrary.wiley.com/doi/full/10.1634/theoncologist.2019-0184
10/13
In the UK, we use the Recovery Package thanks to @macmillancancer. #cancer #survonc #survivorship #lwbc
@macmillancancer: https://www.macmillan.org.uk/about-us/health-professionals/programmes-and-services/recovery-package
: https://learnzone.org.uk/stack.php?s=30
@rcgp @RcgpFaculties:
https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/primary-care-cancer-toolkit.aspx
In the UK, we use the Recovery Package thanks to @macmillancancer. #cancer #survonc #survivorship #lwbc
@macmillancancer
: https://www.macmillan.org.uk/about-us/health-professionals/programmes-and-services/recovery-package: https://learnzone.org.uk/stack.php?s=30 @rcgp @RcgpFaculties
: https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/primary-care-cancer-toolkit.aspx
11/13
@DrN_CancerPCP and @rayychan wrote about how to move forward here: https://bjgp.org/content/70/694/226/tab-e-letters
#cancer #survonc #survivorship #lwbc @LesleyLesleys @NitaKarnikLee
@DrN_CancerPCP and @rayychan wrote about how to move forward here: https://bjgp.org/content/70/694/226/tab-e-letters
#cancer #survonc #survivorship #lwbc @LesleyLesleys @NitaKarnikLee
12/13
Could remote consultations help to build better relationships between oncologists, patients and primary care #cancer #survonc #survivorship #lwbc
Not everyone has access to this. @DrJeffSisler @TTrabjerg
@ProfNDerakshan
@BJGPOpen:
https://bjgpopen.org/content/early/2020/04/01/bjgpopen20X101023.abstract
Could remote consultations help to build better relationships between oncologists, patients and primary care #cancer #survonc #survivorship #lwbcNot everyone has access to this. @DrJeffSisler @TTrabjerg
@ProfNDerakshan
@BJGPOpen
: https://bjgpopen.org/content/early/2020/04/01/bjgpopen20X101023.abstract
13/13
Thanks to @ProfilesRegistr @IKNL @kwf_nl for having me and my supervisor at @QMULBartsTheLon for their time and effort.
Thanks to @ProfilesRegistr @IKNL @kwf_nl for having me and my supervisor at @QMULBartsTheLon for their time and effort.
