1/13 #FOAMed #MedTwitter

Everything I've learnt about living and beyond #cancer research ( #lwbc) over the last years in this minute video! #survonc #survivorship in primary care covering:

Research
Policy
Practice
Future Directions

:

2/13

I wrote a couple of articles in:

@BJGPjournal : https://bjgp.org/content/70/694/226

@CHematology : https://www.sciencedirect.com/science/article/abs/pii/S104084281930191X

But summarised the content in the video above

@Nicholas_Ralph

3/13

What is "living with and beyond cancer" or #cancer #survivorship #survonc #lwbc

The definition depends on who you talk to! Is it at diagnosis, at the start of treatment or after treatment has finished?

: https://bjgp.org/content/61/592/e763

: https://www.cancer.net/survivorship/what-survivorship

4/13

Why is "living with and beyond #cancer" important #survonc #lwbc #survivorship

More people are living with and beyond cancer worldwide due to better diagnostics and treatments.

@macmillancancer : https://www.macmillan.org.uk/documents/aboutus/research/thechangingstoryofcancer.pdf

@cebp_aacr : https://cebp.aacrjournals.org/content/25/7/1029

5/13

Why is "living with and beyond cancer" or #cancer #survivorship important #survonc #lwbc

Whole person impacts:

Physical: scars, fatigue

Psycho-social: isolation, fear of cancer coming back, depression

Financial: cannot return to their job

@BreastDocUK

6/13

@NCRI_partners teamed up with @lindalliance to find out what the priorities are for living with and beyond #cancer research. #lwbc #survonc #survivorship

Top priority: best models to deliver care - what/where/who? @Rachel_NCRI

@NCRI_LWBC : https://www.ncri.org.uk/lwbc/ 

7/13

Most patients and clinicians agree that the community is the best place for cancer care but this needs more funding/resources.

What are the main tools for delivering living with & beyond #cancer care? #survonc #survivorship #lwbc

Care plans have a more coordination role.

8/13

Holistic Needs Assessments can be helpful up to 1 year.

But it might be better to measure engagement with services. #cancer #survonc #survivorship #lwbc

@drtessthompson @AnthonyPerreMD @aliepea

: https://onlinelibrary.wiley.com/doi/abs/10.1111/ecc.13087

9/13

But survivorship care plans do not improve health or patient outcomes.

Probably as the studies vary too much in design, methodology and outcomes. #cancer #survonc #survivorship #lwbc

@ASCO_pubs : https://ascopubs.org/doi/full/10.1200/JCO.2018.77.7482

@OncJournal : https://theoncologist.onlinelibrary.wiley.com/doi/full/10.1634/theoncologist.2019-0184

10/13

In the UK, we use the Recovery Package thanks to @macmillancancer. #cancer #survonc #survivorship #lwbc

@macmillancancer : https://www.macmillan.org.uk/about-us/health-professionals/programmes-and-services/recovery-package

: https://learnzone.org.uk/stack.php?s=30 

@rcgp @RcgpFaculties :
https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/primary-care-cancer-toolkit.aspx

11/13

@DrN_CancerPCP and @rayychan wrote about how to move forward here: https://bjgp.org/content/70/694/226/tab-e-letters

#cancer #survonc #survivorship #lwbc @LesleyLesleys @NitaKarnikLee

12/13

Could remote consultations help to build better relationships between oncologists, patients and primary care #cancer #survonc #survivorship #lwbc

Not everyone has access to this. @DrJeffSisler @TTrabjerg
@ProfNDerakshan

@BJGPOpen :
https://bjgpopen.org/content/early/2020/04/01/bjgpopen20X101023.abstract

13/13

Thanks to @ProfilesRegistr @IKNL @kwf_nl for having me and my supervisor at @QMULBartsTheLon for their time and effort.