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A bit late, but it’s fibromyalgia awareness day and here’s hour reminder that not all physical illnesses are visible and that yes, young people can have health issues.
I have life-interfering chronic pain that can range from minor aches or a few random sharp pains to the point-
I have life-interfering chronic pain that can range from minor aches or a few random sharp pains to the point-
-that I cry forcing myself out of my bed in the morning for work. Sometimes I can start off a day fine, and then later my hands and arms can hurt so bad I can’t pick up my pencil to draw or play games.
I work in software so I often need to use compression gloves to deal with-
I work in software so I often need to use compression gloves to deal with-
-sharp pains in my hands while I work.
Sometimes my body can’t regulate temperature well, so I can be randomly hot or cold without warning. And while unexplainable chronic pain is known as the “main” part of fibro, there are a ton of other things just like that that can-
Sometimes my body can’t regulate temperature well, so I can be randomly hot or cold without warning. And while unexplainable chronic pain is known as the “main” part of fibro, there are a ton of other things just like that that can-
-accompany it. Such as fatigue and exhaustion.
The other thing about fibro is that I can seem fine one day, and be stuck in bed with pain the next. But, also, just because I /seem/ fine doesn’t mean I am. It just means it’s a level of pain that I can tolerate enough to continue-
The other thing about fibro is that I can seem fine one day, and be stuck in bed with pain the next. But, also, just because I /seem/ fine doesn’t mean I am. It just means it’s a level of pain that I can tolerate enough to continue-
-with my life.
I’m not saying any of this for pity. I don’t want people to look and think of how much my life must suck or something like that. I’m sharing this because the voices and stories of people with fibromyalgia matter. And because I had no clue that the rest of the-
I’m not saying any of this for pity. I don’t want people to look and think of how much my life must suck or something like that. I’m sharing this because the voices and stories of people with fibromyalgia matter. And because I had no clue that the rest of the-
-population was not constantly dealing with this. I was convinced I was a whimp that just couldn’t deal with it and that random pain was normal. It was only fairly recently that I expressed this pain to close friends, one who told me “no that’s not normal” and another who told-
-me that my experiences sounded a lot like her’s with fibromyalgia. Because even after spending 3 days in a hospital with what was most likely fibromyalgia pain that they misdiagnosed, I still had no clue that fibro could have been the source of all that pain, or the fatigue-
-that riddled long chunks of my senior year of college.
I’m still learning how to cope with fibro. I’m very lucky that I have the friends that I do who have given me understanding and support, and I’m super grateful for them.
I’m just hoping that if someone reads this thread-
I’m still learning how to cope with fibro. I’m very lucky that I have the friends that I do who have given me understanding and support, and I’m super grateful for them.
I’m just hoping that if someone reads this thread-
-and was feeling the way I did before I was diagnosed, that they might realize there’s a name for the cause of the pain, and that you’re not alone.
There might not be a cure, but sometimes it’s comforting to have a name for it.
There might not be a cure, but sometimes it’s comforting to have a name for it.