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Number 1 is remember disabled people of all ages exist and are a part of society (despite society's best efforts to exclude/ignore us) and face particular risk if we are exposed to virus and the vulnerability you create by your choices. https://twitter.com/TomPark1n/status/1259498887787708428
I'm feeling more anxious not less as my province (BC) prepares to transition into it's 'Phase 2' and re-open and relax various things. Horgan has worsened my anxiety by saying 'no long list of rules.'
Disabled people - and ONLY disabled people (no parents of, no siblings to, no abled professionals) what would policies, rules, funding, etc. would you like to see govt (local, provincial, federal) put in place?
What would make you feel safer?
What would make you feel safer?
Housing: Continue protections against evictions, entry. Prioritize the building of housing for disabled people - all ages - that is designed to allow safe self-isolating & includes outdoor access.
Income: Raise the rates.
PPE.
Cleaning supplies.
Income: Raise the rates.
PPE.
Cleaning supplies.
Reliable safe supply & delivery of items we need. I *really* really wish the person picking, packing and delivering my food was mandated to wear PPE.
Healthcare: continue virtual med, expand pharmacies ability to fill meds
Healthcare: continue virtual med, expand pharmacies ability to fill meds
Transportation: I don't even know how I'd get to appt for non-Covid, non-emergency medical test or appointment at this point.
Sit your ‘I just discovered nursing homes aren’t nice and want to turn specific one aspect of them into a NDP talking point’ asses down and listen to disabled people on this and other issues.
I think we need to discuss policies for healthcare workers treating disabled people. Allowing family (as defined by disabled person - thanks for definition @GERONursing) in is great & obvious but: a) not enough and b)not everyone has people or the ppl they have may also face bias
Having a family member present is probably enough to rein in the ableism & eugenics bent of healthcare pros if they’re white & middle class (tho not necessarily as we’ve seen) less likely for others. Even look at the tablet the hospital took away & sent lawyers after family.
A lot has been written about the eugenics ethics and not rationing care or basing on ableist notions of 'quality of life' - and more needs to be written- but I'd also like to talk about more. Entering hospital can be dangerous for disabled people - what would make you feel safer?
For me, I feel less safe leaving this apartment - I am talking about inside the apt building. Do I stay inside this 300 square feet forever? I *really* need us to talk about people with health conditions on the list who are living in crowded public housing.
The conversations I've had with doctors remind me of conversations I've had with them about supports I needed that weren't covered.
Them: Oh yeah. You *REALLY* can't risk exposure.
Also them: I have no idea to help put the things you need to have happen in place to prevent this
Them: Oh yeah. You *REALLY* can't risk exposure.
Also them: I have no idea to help put the things you need to have happen in place to prevent this
The start of this thread is a quote-tweet because damn it I need ableds to listen to us and govt to start centring disabled people and our needs in this. https://news.un.org/en/story/2020/05/1063242
They are having their own little dialogue about the virus - and even about nursing homes ffs - and not only failing to centre disabled people - per UN recommendation - but almost ignoring us entirely. Parents/CEOs don't count. https://twitter.com/mssinenomine/status/1258457269273890817?s=20
