It's the product that's the trouble. I'm peddling dogshit.#

I go to M.E patients & say, "Here! Eat this dogshit!", "Eat it! Eat it now!". "Here's a tiny bit of dogshit! Eat that!!"

How do you convince patients that evidence of activists' abuse is anything other than dogshit?

It turns out in fact, in reality, that M.E community leaders chose to allow an M.E patient to be threatened and abused for years and years.

I mean seriously! What I am smoking? No-one in M.E wants to know this piece of information. It's a big o' piece of dog shit.

I can go to the M.E Global Chronicle. We can put two dollops of dog shit inside & then slam it closed like a book! That way, when we open it up we get a brilliant dog shit butterfly!

Not gonna happen. Who wants to know that even a charity founder thinks patients are the problem?

An M.E activist currently being paid hundreds of thousands of dollars by the M.E community WILL NOT SAY that calling M.E patients "sick" and "crazy" is wrong!

Smell that?

It 'aint the smell of success!! It's the smell of dog shit.

No-one in M.E wants what I'm selling! :D Lol

Now; I can lightly dust the dogshit with icing sugar: "If we address the abuse problem in M.E activism it'll be easier to get research funding. I say."

But they just see the dogshit beneath:

ABUSIVE PATIENT BEHAVIOUR has kept hundreds of thousands of people suffering for years.

They wont eat it. ?:( They won't eat my dog shit.

In fact some of them get really angry with me for offering them it in the first place.

I say "It's not my dog shit", but that's no good. I am the one who is entering their palace draped with silks & pointing out the dog shits.

Truly, it was much easier to debug assembly language. The "PC" never took offence. The bugs didn't byte-back. One would spend an age and an effort tracking down the tiny little errors, correct them simply, and the entire program would function again.

The keyboard's circular text buffer wouldn't refuse to talk to you FOR FOUR YEARS because it was covering for an error in the Map Mask register.

The Real Time Clock wouldn't come to you and suggest that you should put up with the video buffer because he was "PROBABLY DRUNK".

(Seriously, multiple M.E Activists tried to excuse ABUSE OF ME PATIENTS by claiming it was okay because the activist involved might-have-been, MIGHT have been, drunk!)

Lol. From outside the cult this is funny!!

Inside, of course, it's dead serious. It's the end of activism.

So, on the face of it. No-one inside M.E activism is ever going to want to eat my product.

They do not want to know information that will destroy M.E activism. Fair enough.

"Call them a fool", be ill, forever.

It is quite understandable for doctors & researchers to WALK AWAY AND LEAVE ME PATIENTS.

No-one, I mean NO-ONE has to put up with threats & abuse while trying to heal you.

No-one has to suffer activists gleefully turning the screws on their victims while eating virtual popcorn.

(While I was working my socks off to help M.E patients, their behaviour and the behaviour of their charities & activists led me to an extremely dangerous low level of mental health.

NO-ONE SHOULD BE ENDANGERED BY ME PATIENT ABUSE.

I feel morally free to leave you & walk away).

Do you see? Dog shit. No-one in M.E activism wants to think that M.E activism itself is so utterly toxic that if it it sees an advantage it will ruthlessly target and harm M.E patients.

Dog shit. Get your dog shit here. Fresh dog shit!

See a journalist on a national newspaper being called a "incurious little shit!" and then, LADIES AND GENTLEMEN marvel at the M.E patients wondering why they are stigmatised by the wider society!!

Read all about it! Read all about it!
DOGSHIT FOUND IN ACTIVISM
PATIENTS DOOMED

Of course, the fact that M.E patients are doomed is basically what I have been working on since the 1990s.

I was so badly treated, so isolated, and left in so much pain, that it was obvious I had to be there for all the other patients in such distress.

And, of course, I still am!

The reason I tried to write for the M.E Global Chronicle is because I don't want M.E patients to doom themselves to pain and misery. I want them to accept the abuse problem, no matter how bad, so they can deal with it and get better.

I tried. I failed. People don't want to know.

And so, as I say, it'd appear on the face of it that people won't ever want what I am selling.

And to be clear, I don't ask the M.E community for $100,000s. I offer my dogshit for nothing, (at a great personal cost, btw).

But I cannot even give it away.

For it's dog shit.

Who in the right mind would want to know that an M.E charity deliberately chose to leave an M.E patient to be bullied for four years?

No-one. This is not simply a "bitter pill" for M.E patients this is utterly the unpalatable product of a canine digestive system.

I get that.

And this is where doctors make an error.

While I was fighting for M.E patients' lives I spoke with a physician about anti-viral medication.

He turned to me, at the time an M.E patient of 30 years or so, and said:

We tried that... AND SOMEBODY DIED.

And I remember clear my reaction: I ignored the emotional content of the message and instead calculated the percentage risk to me of trying the medication.

Doctors have made leaps and bounds understanding just how awful M.E is, but they don't *quite* get it.

Of course I would risk my life to be cured from M.E.

The symptoms of my M.E were ENDLESS, PAIN AND DISABILITY. PUNISHMENT FOR EVERY THOUGHT, WORD OR DEED.

Of course I would risk all to save my one life from this miserable, miserable existence.

To get rid of M.E, to recover my function and my life, I'd even eat some dog shit.

When I was extremely poor with not enough to eat, the M.E patient community helped me to quit smoking.

150 M.E patients came and wished me a happy birthday.

They told me that I was witty, intelligent & kind, or like the editor of the Chronicle they said I was precious & unique.

Now, of course, while I peddle dog shit, many, many, patients treat me as dog shit. They make no distinction between the message and the messenger. Many take pride in this.

Unfortunately, M.E patients and the shun their leaders created left me severely ill and alone.

A voice pushed back into the shadows.

But, do you know what?

When I started talking about recovery things change.

Recovery from M.E trumps everything.

People will swallow the bitter pill if they even half-believe that they can get shot of this awful, awful disease.

When I started defining HOW TO MANAGE M.E, HOW TO RECOVER FUNCTION suddenly there's 1.1 million views on my account. Not bad, considering that almost no-one retweets or interacts with me owing to a community wide and *utterly abusive* shun.

On the face of it, it is horrible to see so many people hurt, isolate and abuse and then go see what they can grab for themselves and their recovery from the targets of their attacks.

But, it's no matter. I was here to serve M.E patients and to help lift us out of the well.

Fundamentally, M.E patients' abusive behaviour towards me doesn't change how much I care about them.

But, as a patient I wondered where all the time went to... It was shocking to find out that abuse in M.E activism expresses itself in terms of time wasted.
If you're trying to work out how to treat M.E it can take quite literally years to get replies to the simplest of questions.

The politics of M.E, and as I've discussed elsewhere the tribalism, blocks work on recovery.

TRIBALISM BLOCKS WORK ON RECOVERY.

I mean seriously, it would be easier to help find good treatment for M.E patients, if M.E patients stopped attacking me, my marriage, my work and stopped sending me threats!

Surely that's obvious?

Abusive behaviour from activists blocks recovery for all M.E patients.

But!

Conversely, abusive behaviour is irrelevant in comparison to any good work on recovery that can manage to get done.

Reader, while I worked on recovery last year, I received further public abuse from an M.E activist who'd sent me threats.

But it didn't stop me. And it didn't stop me generating 1.1 million views on work talking about HOW ME PATIENTS CAN BE BETTER!

And within the context of such success, bullying is shown for what it truly is: dog shit. A behaviour we should all have grown out of in the school yard.

Now;

I can't talk to M.E patients ever again. The bullying from M.E activists got so bad.

But I can still work on my own. I can still help all people with M.E to recover.

And you, YOU, reader can help me.

Accept the issue! Stop the bulling! Clear the way!

Eat shit ~ and live!