#TwitterOfTime May is Sturge Weber awarness month. My 13 year old daughter has Type 1 SWS. I am going to be running an awareness and fundraising campaign for @SturgeWeber on my channel.

I know not everyone can donate, but if you could RT and spread the word I will be adding Sturge Weber information to this thread.

If you can donate here is the link

Https://sturge-weber.org/participate/donate-today.html

If you add WoTUP! in the How have you heard of us, it will help me track donations.

SWS is a congenital, non-familial disorder caused by the GNAQ gene mutation.  It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms can include eye, endocrine and organ irregularities, as well as developmental disabilities

You can go to

https://sturge-weber.org/new-to-swf/understanding-sturge-weber.html

To find out more.