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#TwitterOfTime May is Sturge Weber awarness month. My 13 year old daughter has Type 1 SWS. I am going to be running an awareness and fundraising campaign for @SturgeWeber on my channel.
I know not everyone can donate, but if you could RT and spread the word I will be adding Sturge Weber information to this thread.
If you can donate here is the link
Https://sturge-weber.org/participate/donate-today.html
If you add WoTUP! in the How have you heard of us, it will help me track donations.
If you can donate here is the link
Https://sturge-weber.org/participate/donate-today.html
If you add WoTUP! in the How have you heard of us, it will help me track donations.
SWS is a congenital, non-familial disorder caused by the GNAQ gene mutation. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms can include eye, endocrine and organ irregularities, as well as developmental disabilities
