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I had a video appointment with WonderBoy today. It prolly wasn't meant to go an hour. But I had a lot to talk about. Ask about. Go over details of.
Like, the idjit at medical records still hadn't added my advanced directive to my file, so I told WonderBoy to put me down as DNR. https://twitter.com/RachelMcGonagi1/status/1252784035819999234
Like, the idjit at medical records still hadn't added my advanced directive to my file, so I told WonderBoy to put me down as DNR. https://twitter.com/RachelMcGonagi1/status/1252784035819999234
He understood. Aggressive resuscitation sücks áss. I have an ICD, so if my heart just stops, I'll be kicked back into play.
But if a buncha shït goes wrong at once that the ICD ain't gonna cut it? I am NOT cool with beaucoup tubes and wires and eating via an IV.
But if a buncha shït goes wrong at once that the ICD ain't gonna cut it? I am NOT cool with beaucoup tubes and wires and eating via an IV.
We had to get into the gritty details...because I had to know.
How fast is the dobutamine gonna chew up my heart?
How'm I most likely to bite it?
What's it gonna be like at the end?
How fast is the dobutamine gonna chew up my heart?
How'm I most likely to bite it?
What's it gonna be like at the end?
To his credit--or training, or both--he didn't shy away.
So, there's about a 15% survival rate at a year, with dobutamine. Six months, he said, is where the Big Bad Stuff starts in earnest.
Realistically, therefore, I have between 6 months and a year to live.
So, there's about a 15% survival rate at a year, with dobutamine. Six months, he said, is where the Big Bad Stuff starts in earnest.
Realistically, therefore, I have between 6 months and a year to live.
(No, Borat, no joke.)
Given the poor performance I gave at my CPET recital*, and my continued dyspnea, low EF, hypotension, low pulse pressure, etc., etc., etc. it's liable to be closer to the 6 months mark, to be quite honest.
*'member that? https://twitter.com/RachelMcGonagi1/status/1225167458819919873?s=20
Given the poor performance I gave at my CPET recital*, and my continued dyspnea, low EF, hypotension, low pulse pressure, etc., etc., etc. it's liable to be closer to the 6 months mark, to be quite honest.
*'member that? https://twitter.com/RachelMcGonagi1/status/1225167458819919873?s=20
Dobutamine, as previously mentioned, can cause "wide complex tachycardia," or, basically ventricular tachycardia. That can kill you ded via heart stoppage-ness.
But because I have the ICD, all I'm liable to get is shocked.
I will likely die by drowning in my own juices.
But because I have the ICD, all I'm liable to get is shocked.
I will likely die by drowning in my own juices.
It will be unpleasant. Painful. Involve lots of gasping for breath, I imagine. Coughing galore. My kidneys will probably shut down, too, towards the end. Maybe my liver, too. My lungs filled with my own blood.
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I had WonderBoy initiate palliative care services today.
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I had WonderBoy initiate palliative care services today.
