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In my immediate family I had 3 medical cases that were missed by doctors:
-stage III colon cancer (my mom)
-neurological complication post surgery (me)
-familial pancreatic cancer (brother in law)
This is scary, people, because none were difficult diagnoses of rare diseases 1/
-stage III colon cancer (my mom)
-neurological complication post surgery (me)
-familial pancreatic cancer (brother in law)
This is scary, people, because none were difficult diagnoses of rare diseases 1/
Mom had iron deficiency anemia: googled it. In the elderly, it is a clear indication of smth serious gastrointestinal. Her dr told her to eat spinach!We paid for a colonoscopy: turns out it& #39;s advanced cancer.
Mine was scarier (obsv also b/c I was sick while figuring it out) 2/
Mine was scarier (obsv also b/c I was sick while figuring it out) 2/
I became disabled at 36 after what was supposed to be a standard surgery. Couldn& #39;t walk, sit, let alone work or exercise. Lost weight, was 90 lbs probably dying slowly. Doctors sent me home on opioids, said I& #39;m just sensitive to surgery. Looked it up and went abroad to fix it.3/
Brother in law& #39;s both dad and brother died of pancreatic cancer. Obvious move: genetic testing. Nope, nobody suggested it. We did it. Turns out they have a BRCA1 mutation, now looking into how we can maybe do something to catch it early for my brother in law.4/
And these are only the deadly, straightforward ones.
But doctors also missed my daughter& #39;s sleep apnea&a particular form of OCD in my other daughter.Also I didn& #39;t listen to their allergy advice when my baby daughter had a reaction and I think I dodged it with exposure therapy 5/
But doctors also missed my daughter& #39;s sleep apnea&a particular form of OCD in my other daughter.Also I didn& #39;t listen to their allergy advice when my baby daughter had a reaction and I think I dodged it with exposure therapy 5/
Pretty sure these medical misses are systemic but it almost seems like they shouldn& #39;t be that hard to fix?
Are people thinking about this? @rivatez?
Not to mention inept af management of metabolic disease, with medication and wrong advice about diet & exercise
cc: @Mangan150
Are people thinking about this? @rivatez?
Not to mention inept af management of metabolic disease, with medication and wrong advice about diet & exercise
cc: @Mangan150
Imagine we could innovate to fix these cracks. How would "building" here even look like?
