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i ain’t waiting for May (Lupus day) to explain what Lupus is. and since i’m lifeless af, i’m giving y’all a brief about lupus and an advice that mostly chronic patients wish that others would understand (:
Lupus: is an autoimmune, chronic disease. it can triggers various organs
Lupus: is an autoimmune, chronic disease. it can triggers various organs
cause is unknown. bc it triggers many body parts, other than the joints. it could cause other diseases also, or contribute in ruining the organ somehow.
what makes it so hard to deal with, is you don’t know when you’ll develop a flare up. it can just surprise you the next day.
what makes it so hard to deal with, is you don’t know when you’ll develop a flare up. it can just surprise you the next day.
the most important part i’m tryna say is, people with “auto-immune” suffer both physically and mentally& it’s not easy. at all. it is really hard to even do the slightest things. getting out of bed is an accomplish itself, then how about actually working? or studying?..etc
tomorrow is just a surprise, you don’t know what’ll happen. it can be a headache, or becomes more severe where you’re dropped dead on the bed/ ER. some things like that confuses you, and the surroundings, people may assume you’re faking, or you’re overreacting, it’s not.
even the patient himself don’t know why it’s happening or how to prevent it. we just have to deal with it even with taking some rest and just lay down your body is attacking itself so laying there “sometimes” doesn’t really help..
the purpose i’m writing this is because, you don’t know what’s a person could go through ..not just an chronic disease, but generally. everyone has his own reasons for their actions. it’s not just a year or two i’ve been in this, it’s a struggle that i’d wish it could end.
i got called so many stuff from various people questioning my credibility. “idk why yesterday i was perfectly fine, now i’m crying my eyes out in bed and i can’t move without help” it’s also strange to us and feels like shit as well :/
my point is..don’t misunderstand others, not everyone will explain their issues even if it seems like they would’ve been lying, try giving them various reasons in your mind that they’re not ..
im saying this on behalf of me and other patients. We do not ask for sympathy, we just want people to understand our struggle. If we don’t say it we’re still in pain, & if we say it then we’re in fucking out of control pain.
thank you for reading much love <3
thank you for reading much love <3
