On day 20 of shielded isolation and am slowly learning more about my condition #CRPS. Namely that I will come out of this a lot worse than I went in. Years of physio is being erased because I’m stuck at home. Hugs to all the other warriors facing the same issue #COVID19 #StaySafe

But also that my nerve disorder is as bad as I’ve been saying it is. It is not all in my head. I am not lying when I say I can do nothing without pain. I am literally at home doing nothing and my pain levels are still through the roof. My legs continue to spasm.

They continue to cramp and twist under their own steam. I am still collapsing due to the intense burning heat that roars through my legs. I am still regularly facing bouts of nausea and vomiting because my pain is not controlled.

I am not getting through this any better than I went into it. So to all the people out there that think “resting” will ease chronic pain and that we choose not to do things. Take a minute to read through this thread and understand:

When we stay home and rest - it is because moving causes more pain. It’s not because being at home means we are pain free and can suddenly stop taking our pain meds.

Rest is not a magic cure.

For some of us it brings a quiet form of torture.

#CRPS #StayHome #StayAlive