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We know the #COVID19 pandemic has particular implications for some people with neurodevelopmental conditions - not just from the virus itself but from the disruption, isolation and uncertainty it causes.
Below is a thread of our member organisations' guidance
Below is a thread of our member organisations' guidance
. @AmbitiousAutism have produced this guide for autistic people on managing anxiety in these uncertain times: https://www.ambitiousaboutautism.org.uk/understanding-autism/uncertainty-anxiety-and-the-coronavirus-pandemic
. @TheBrainCharity have collated links to public health advice, updates and myth-busting here: https://www.thebraincharity.org.uk/whats-on/news/917-coronavirus
. @Blisscharity have produced guidance for parents of premature or sick babies: https://www.bliss.org.uk/parents/support/coronavirus-covid-19-information
. @epilepsyaction have created this advice page for people with epilepsy: https://www.epilepsy.org.uk/info/daily-life/safety/coronavirus-covid-19
. @fragilexuk have produced this guide to social distancing and high-risk conditions which commonly co-occur with Fragile X Syndrome: https://www.fragilex.org.uk/post/fragile-x-and-social-distancing-covid-19
. @MaxAppealUK have created guidance for people with 22q11.2 deletion, including advice on medication: http://www.maxappeal.org.uk/news/content.asp?ni=630
. @mencap_charity have created an easy-read guide to COVID-19: https://www.mencap.org.uk/advice-and-support/health/coronavirus
. @MQmentalhealth have written this call to action for researchers on COVID-19 and mental health: https://www.mqmentalhealth.org/news-blog/post/the-urgent-need-for-a-mental-health-research-response-to-covid-19
. @Autism have produced advice on talking to autistic people about these events, including social stories: https://www.autism.org.uk/services/helplines/coronavirus.aspx
. @NervetumoursUK have created this guide to high-risk conditions which commonly co-occur with neurofibromatosis: https://nervetumours.org.uk/images/downloads/Neurofibromatosis__Coronavirus-minus_header.pdf
. @NOFASUK have produced a guide for people with foetal alcohol spectrum disorder on how they can keep themselves safe: http://www.nofas-uk.org/?p=1534
. @PDASociety have collated tips for talking about COVID-19 and resources for home education: https://www.pdasociety.org.uk/links-and-tips-for-the-pda-community-during-the-coronavirus-pandemic/
. @theRCOT have created a guide to staying well when social distancing: https://www.rcot.co.uk/staying-well-when-social-distancing
. @RCSLT have created a landing page with guidance for various conditions relating to speech and language: https://www.rcslt.org/news/covid-19
. @technologyforg1 are posting a new approach to using technology during self-isolation every day: https://technologyforgood.co.uk/2020/03/13/technology-to-get-you-through-if-you-are-self-isolating/
. @tourettesaction have written the following on COVID-19 and the Tourette Syndrome community: https://www.tourettes-action.org.uk/news-471-.html
. @UKTSA has produced guidance for people with tuberous sclerosis complex, including advice on medication and co-occurring conditions: https://tuberous-sclerosis.org/news-coronavirus-tsc/
. @WSF_UK have created advice for people with Williams Syndrome and families, including managing anxiety: https://williams-syndrome.org.uk/corona-virus/
. @Sibs_uk have created http://www.youngsibs.org.uk/ , a platform for 7-17 year old siblings of disabled people to discuss their concerns and support each other
. @Autistica and @UniofNewcastle have put together this guide to the latest evidence and strategies for managing uncertainty and anxiety in autistic people: https://twitter.com/Autistica/status/1240926233212395522
. @CYPMentalHealth have produced a live briefing on the impact of COVID-19 on children and young people's mental health and relevant support services: https://twitter.com/CYPMentalHealth/status/1242079355511156737
. @Unique_charity along with @clingensoc and @BritSocGenMed have put together this guidance for people with rare genetic disorders: https://www.rarechromo.org/covid19update
The new @Autism hub for coronavirus-related resources and advice is available here: https://twitter.com/Autism/status/1242885787009585152
Here's the new landing page for @Autistica's COVID-19 resources: https://www.autistica.org.uk/what-is-autism/coronavirus
. @RCSLT have collated these resources for speech and language therapists: https://www.rcslt.org/learning/covid-19/resources-for-slts
. @RADiANTCRG have collated a full list of resources for people with various NDCs within its remit: https://twitter.com/RADiANTCRG/status/1243972840539541504
. @youngepilepsy have produced a video answering your common questions around COVID-19 as part of their guidance: https://www.youngepilepsy.org.uk/covid-19-information.html
. @AmbitiousAutism have schedule planners and tips for autistic people and families around managing anxiety here: https://www.ambitiousaboutautism.org.uk/world-autism-awareness-month-2020
. @TheSleepCouncil have put together tips to help children maintain good sleep during these stressful times: https://sleepcouncil.org.uk/sleep-and-anxiety-issues-with-children-from-the-sleep-charity/
Here's @tourettesaction's information on COVID-19 and the Tourette Syndrome community: https://www.tourettes-action.org.uk/index.php?p=145
. @Autism_Alliance have collated the existing emergency legislation ( https://www.autism-alliance.org.uk/covid-19-emergency-legislation/) and current best practice ( https://www.autism-alliance.org.uk/covid-19-current-best-practice-website-links/) surrounding COVID-19
. @fragilexuk have produced these tips on creating a sense of routine while at home: https://www.fragilex.org.uk/post/we-re-all-at-home-help
. @ICANcharity have developed resources on how to talk to children and young people about COVID-19, as well as home-based activities for children: https://ican.org.uk/a-message-to-our-supporters-on-coronavirus/
. @RettUK held a webinar on COVID-19 last week - catch up or see the Q&A in text format here: https://twitter.com/RettUK/status/1248872179946655744
