This is my story of how i become the 1 out of 100,000 Malaysian that have Multiple Sclerosis

On June 2018, i had numbness on my right leg after my evening run on the treadmill. I thought it’s nothing so i let it be until one day after my usual evening run, the numbness just won’t go away and my right leg feels a bit weak as per usual.

I went to the clinic to get it checked by the dr & the dr said that my nerve might be damaged and it can take up to a year to recover and he gave me vit B. The numbness still won’t go away and i can feel that my right leg is getting weaker day by day.

It’s very hard to walk to the point i have to drag my right leg. The numbness have spread up till my waistline in a few weeks. I bump into many things and even got bruises from it but since my waist is numb, i can’t even feel it. My parents decided to bring me to the hospital

We went to the orthopaedics that my mum usually consult for her slip disc. The orthopaedics then refer me to another ortho that specialized for legs area. After some examination on my legs he advised me to do a MRI to check on my spine incase if there’s a compression on it.

So i did the MRI a few weeks later and met the dr back to check on the result. The result came back normal with no compression at all on my spine and discs. The dr can’t diagnose me with anything so he gave me some meds to repair the nerve. Took that & my numbness went away.

So i thought it’s all over and my nerve has completely healed. But i do realized that i’ve been very fatigue and can’t be as active as i was before. So no more morning//evening run on the treadmill. There were days where i felt like i’m going faint because it’s so hard to breath

There’s also days where i open my codings and cannot recall when did i code it, how i code it and what is it for. I have vertigo most of the time so i have trouble on focusing on my work. I went to the clinic for countless of times to check what is wrong with me

All the dr said the same. First verdict was oh you might have low blood pressure. Second verdict was oh it must be because of your ears. Third verdict was oh it’s because you’re under a lot of pressure and the bad posture when you’re working.Lastly they said,it’s all in your mind

So i gave up. I told myself that i might be imagining all of this. Maybe just maybe. One day on February 2019 my mum asked me to go to the clinic to do a blood test to get my thyroid checked. Thyroid problems is common in my family. Lots of my relatives have it so it might be it.

Of course, the result came back negative. On the blood test result there’s this one number that shows if there is something wrong in my body or not. The number is quite high so it indicates that there’s something that’s attacking my body but when i did the blood test i had a flu

So the dr said it’s must be because of the flu.But deep inside i feel like there must be something else,how can the number be that high if it’s just a flu?Weeks after that, on 1/3 the numbness that i had last year cane back but this time it’s attacking both my right and left leg

This time it’s spreading very fast and just after 3 days the numbness have reached my waistline, i have muscle spasms, my legs feels weak and i can barely walk anymore. I stayed at home felt like a dead useless person for a week while waiting for my appointment at the hospital

On 11/3, i went to the hospital to get my legs checked. I went to the same dr and he’s once again clueless on what is wrong with me. Another ortho came and said i have to be warded to get me tested on many things including neuro test and MRIs

During the first week i did a few MRIs and neuro test. Neuro test came back normal and they said it’s spine problem. MRIs came back normal and they said it’s neuro problem. Both sides were confused at that time. What is really wrong with me?

I got tired and sick of the hospital so i asked the dr if he can discharge me on friday. The dr told me to do another MRI for the upper part of my spine just incase there’s something because during my first week in the ward, my numbness have spread up to chest area

The MRI result came back and they said there’s a lesion on my spinal cord so the dr said he can’t get me discharge just yet because it looks like something serious. I went back home for the weekend and went back to get warded on monday. On monday i did a MRI for my brain

I also did a lumbar puncture on that same day. They’re trying to diagnose me with something. At that time i just wanted it to be over and get diagnosed with at least something. I’m tired of being sick but didn’t know what it was. The lumbar puncture hurts like hell

On 21/3, the Drs ask my parents to come to the hospital to discuss something.I knew it must be something pretty bad when the dr said that. The dr show my parents the brain MRI result. I have 3 lesions on my brain and with that result she can confirm that i have Multiple Sclerosis

In the ward, before my parents told me about the disease they both cried. It’s my first time seeing my parents cried so hard, they look so heartbroken I thought my life was over at that point. This scene still breaks my heart till this day

I had to quit my job. The dr said this disease had affected my eyes & legs. I can be partially blind and paralysed if i’m not treated with the right medication.

Since Multiple Sclerosis is a rare disease in Malaysia, the medication is limited and it cost a lot. My brother is a dr and even he himself is not familiar with this disease. I usually consult with him whenever i’m sick but this time, i’m lost. I don’t know who to talk with

It’s been very hard for me after i got diagnosed with Ms. Note that there is still no cure for Multiple Sclerosis till this day. Upon hearing the therapy cost, i feel hopeless. It’s so expensive that i feel like giving up on it. Mind you that i come from a middle class family

How can i afford a 330k therapy? This have been in my mind, troubling me since the day i met my dr for the therapy consultation.

So to fund at least a small part of my Multiple Sclerosis lemtrada therapy, i decided to sell the cookies that my sister made. Please help to rt this. I don’t mind if you guys tak beli but hey at least i can spread awareness about Multiple Sclerosis

Macadamia choc chip cookies, RM28(42-45pcs)

Dark sea salt cookies, RM24(42-45pcs)

Both dark sea salt and macadamia choc chip cookies boleh pos but not for cheesy red velvet sebab yang tu soft cookies.

Sorry for cheesy red velvet cookies my sister put the production on hold since she’s focusing on puasa and raya punya order. Red velvet cookies tu soft cookies and tak tahan lama sbb ada cream cheese so my sister tak ambil order for puasa and raya for that one. So sorry