#Registry

CDC materials to try to get ALS organizations to increase registry uptake. Take a look... https://www.cdc.gov/als/files/National-ALS-Registry-Webinar.pdf 1 They are treating them like naive volunteer organizations who need a lot of

Let the People Ride

I am helping organize a bike drive for the residents of DC House of Ruth’s transitional housing programs. The families that live in these programs are poor and rebuilding their

Rollo McFloogle

If you knew how awfully managed sex offender lists are, maybe you wouldn't be celebrating this man's violent behavior.https://twitter.com/Wetworxx/status/1249711621703958528 Because you morons high fiving talking about how they should be

David Boulware, MD MPH

What are the limitations of observational registry studies? One major issue is confounding by indication. How physicians act is not the same as a Randomized Clinical Trial testing a therapy

Anyone who has filed a petition in the Supreme Court knows that the Registry will pick out the smallest "defect" & make you re-file.It is, therefore, surprising that a defective

sandy olgeirson

Did you know that there is an urgent need for more POC and multi-racial individuals to join the bone marrow registry? I didn't either. Until a loved one was diagnosed

For my 30th birthday, I set up a gift registry, kind of as a joke + posted it to IG to see if anyone would send gifts. I had a

Dr. M Rosenbach

Ok, twitter break for me now. Have a good 3 days, which in COVID time will feel like a month, and so I’ll probably end up checking this tomorrow. Ok

Melody Joy Kramer

In a few weeks, I am donating my bone marrow to an anonymous person. It has already been one of the most gratifying experiences of my life, and I'm nervous

Ted Corcoran (Red T Raccoon)

Veterans on Burn Pit Registry May Be at Greater Risk for COVID-19, Lawmakers Say.How about doing something about it?https://www.military.com/daily-news/2020/04/21/veterans-burn-pit-registry-may-be-greater-risk-covid-19-lawmakers-say.html Here is a se

#ALSregistry meeting thread What we see so far. Still has not started. Starting 815 EDT Mehta agenda Nothing about better description of prevalence and incidence of ALS in the US.

Indic Collective

indiccollective

1. Our Petition seeking the Hon'ble Supreme Court's intervention in the #BengalViolence was filed in the afternoon of May 3, 2021. By the afternoon of May 4, 2021, all queries

Governor Tony Evers

Today @DHSWI and I announced the Wisconsin Emergency Assistance Volunteer Registry (WEAVR). Through WEAVR we are proactively creating a wide network of volunteers to increase capacity and care. And folks,

The COVID-19 Global Rheumatology Alliance

CORRECTED THREAD: from the Global Provider-entered Registry (EULAR registry not included)Total = 146 patients; 23% are male/77% female, 18% are age 65+. 7 patients are deceased.Top 3 COVID symptoms: 75%

Chantel Schnider

schniderchantel

I never thought I’d be doing this but I’m posting our baby’s registry. I feel sorta embarrassed to even be doing this as I hate when family & friends know

Can anyone explain to me WHY when folks gift to expecting/brand new parents, they completely ignore the registry? This is so consistent and common, there must be a reason for