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Dr Mark Guthridge
Dr_M_Guthridge
Thread:12 reasons that doctors disbelieve patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS1. Doctors tended to see #pwME as having “certain personality traits"#SickNotWeak #MedEd #MedicalTwitter https://www.bm
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becky
pink_lotus1
#MEawareness #pwme #MEcfsI am having a wobble. Just realised that it will be exactly ten years on Monday since I first became ill. I was a teacher, & I loved
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Lucy Goodwill
lucygoodwill
People who see please offer me a seat/disability badges and ignore them... know that we see you and it’s not ok (aka everyone on public transport this morning) #pwme #fibromyalgia
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Emma Nock
LibertyFarmEmma
The rhetoric around furloughed workers is so radically different from that around disabled people. Imagine if the chancellor said 'noone wants to be on ESA, it's not their fault businesses
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Nicola Jeffery
NicolaCJeffery
Thank you so much for sharing & I must share with you; I was first told I had #Fibromyalgia aged 19 after years of "it must be growing pains or
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Dr Mark Guthridge
Dr_M_Guthridge
1/ ThreadMyalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFSIs it really that bad?Trigger warnings: The studies below paint a very bleak picture#MyalgicE #SickNotWeak #pwME #MyalgicEncephalomyelitis #ChronicIllness #MedEd #MedTwitter #SickNotWe
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Lena // #BlackLivesMatter // 🏳️🌈 ♿️
boisei0
This weekend has been genuinely interesting when it comes to awareness. I previously considered May 2017 as starting point of ME symptoms. It wasn’t, that’s when it worsened. I’ve had
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Hannah Davis 🦈
ahandvanish
One of the most jarring and upsetting things I've learned as part of this #longcovid journey is the entire world of post-viral and post-infectious illness. One of these, a neuroimmune
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Dr Mark Guthridge
Dr_M_Guthridge
18 myths & misconceptions of Post-Exertional Malaise #PEM in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS#PEM (aka PENE, "flare" or “crash”) is seriously debilitating symptom caused by exercise#SickNotWeak #Si
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Paula Knight ✒️🎨 ♿
Paula_JKnight
Megathread: 1 Trying to unpick reasons why people disengage from those with #chronicillness such as #ME My thoughts below. Taken a couple of months! Feel free to add #neisvoid #pwme
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Dr Mark Guthridge
Dr_M_Guthridge
1/ The problem with Myalgic Encephalomyeltis/Chronic Fatigue Syndrome #MECFS is that it seems so ridiculous that exercise could actually make patients worseHow can exercise be so bad for #pwME but
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Michiel Tack
MTackCVS
1) New article on severe ME/CFS by the researchers who manage the UK ME/CFS Biobank. They visited a cohort of nearly 100 patients housebound by ME/CFS and wrote down their
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Millions Missing France
MillionsMissgFr
Etat d’un malade d’encéphalomyémite myalgique *légère* : 1 an Normal: peut courir, faire une rando, sortir à une soirée Pas bien: préfère rester à la maison, marche 1h = fatigant
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Jennifer Brea🦒
jenbrea
I am going to write something that will be difficult to understand unless you have been unable to work, severely incapacitated, homebound, or bedridden due to a viral infection for
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Vlad Vexler
VladVexler
I've just read an article by Dan Neuffer about recovering from #MyalgicEncephalomyelitis, which as @cfs_jo points out , uses language that will worry many #pwme. Long THREAD. I do get
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LongCOVID in Academia
longcovacademia
From an anonymous PhD student living with #LongCovid: "Long Covid is absolutely terrifying and completely traumatising. Not knowing what was going on with my body for months on end was
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